Not many of you would know her though a few of you would from chatting with me and a couple even luckier ones got to meet her in person. She was my sister but she was so much more than that but the one thing I want to let you all know is a year ago today we lost someone who was a huge support to our cause.
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| This is Diana at her clinic Paladin Physical Therapy in Cranston, RI |
When I didn't think I was ever going to figure out my medical mystery, she took me by the hand and helped me find what I needed to. She was the first person I told about Dercum's when I finally made the connection.
After that she took it upon herself to read all she could on this disease and would actually go out looking for things that would help me. Once she called up an old college buddy that was working with ALS patients to get exercises that would be easy for me to do. This is a person she hadn't talked to in 20 years but she thought he could help. She was desperate to help me in any way she could (and not just me, any person who knew her she would have done the same for).
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| Diana Mullen-Rivers |
She co-owned a business and taught classes at Boston University where she made sure that her fellow PTs and all her students knew the symptoms of DD. She felt she could make a difference for us that way.
So though her loss was much larger than all that for me, I wanted to let you know that a year ago today we lost a DD warrior but hopefully her acts have helped us all just a bit.
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